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THE MACULAR
DEGENERATION COMMUNITY

Rachel


 

Name
Rachel Evans

Born
01/19/1994

Home
Alabama

Diagnosis
Stargardt disease

Eyes Affected
Both

Eye Color
Blue

Age at Diagnosis
14

Acuity
Varies

Treatment
None, other than Lutein supplements and wearing polarized, UVA/UVB protective glasses.

Impact
There hasn't really been that much of an impact. But it has made me more determined to fulfill my dreams in life. when I was told that I had this disease I was a little bit upset, but after talking to my step dad and the doctors, I decided to not let this change my attitude but better it and make it more positive, and I'm going to fight it and I will help find a cure. I guess the way I look at it is whatever happens, happens. I'll just take it for what it is and overcome it. I'm not going to let it get the better of me. Even though my step dad works in Afghanistan that makes me even more determined to find my place in life and accomplish way more than anyone would expect me too.

Positive Effects
Being diagnosed actually gave me more drive and will power to try new things and talk to people about Stargardt's. I also want to help them have a more positive out look on thing, and not be so down about having a disease because then you get to experience way more than you got to before. I've got to go have a bunch of testing done and I have to admit that it was sort of fun. I thought it was very interesting. I really want people to see its not as bad as everyone makes it out to be.

Adaptations
After my appointment with the eye doctor when it was confirmed that I have Stargardt's, we went out and bought thirteen pairs of new sunglasses. I actually have noticed a difference in wearing sunglasses and not wearing them outside. Before when I didn't wear them my eye would feel like they were constricting and straining. Now when I wear them outside it's easier to see and do things better. It is hard to get used too but it becomes a habit and I have lots of nice shades now.

Family History
Maternal Great Grandmother diagnosed with Juvenile Macular Degeneration at the age of 14. None known on Paternal side of family.

Employment
High school student

More About Me
I am currently a freshman at Weaver High School in Alabama. I want to finish school and go to college.