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THE MACULAR
DEGENERATION COMMUNITY

Mohammad


 

Name
Mohammad Abdul Mannan

Born
5th October 1973

Home
Chittagong, Bangladesh

Diagnosis
Retinitis pigmentosa or Stargardt disease

Eyes Affected
Both

Eye Color
Black

Age at Diagnosis
6

Treatment
TREATMENT

Prognosis
First I was diagnosed with Retinitis Pigmentosa. So I all doctors prescribed me to take a lot of vitamins & dietery supplements. But I was realizing little difference between other RP patients and me. So finally, in 2010, I asked a Retina Clinic in India to send my all test reports to ensure about my disease. But he reported me that mine is not RP, but Startgardt disease. So I studied on some website on Stargart disease and found a lot more similarities than with RP.

Family History
In my family history there were not any patient who had or has any disease like RP or SD.

Impact On Your Life
I am a creative peraon who always wants to learn more everyday. Also, want to do something for the technological development of my country. I have more interest in introducing with newer technology.

But day by day I am almost bounded to close all my dreams and reduce all of my activities that will help me to make my dream real. So I want to overcome the eye problem so I can use my life properly. I am also now working in my job only with my experience support. But I am sure that if the progression continues, then after one year I will have to leave my job. For that reason, I am ready to take any risk to get cure. I am also ready to participate in any experimental treatment.

Positive Effects
I do not feel any positive effects here in my country for this type of patient.

Adaptations
ADAPTATIONS

Employment
Electronics Engineer, also working as Chief Engineer in a large Group of Textile Industry

More About Me
MORE