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THE MACULAR
DEGENERATION COMMUNITY

Mirela


 

Name
Mirela

Born
1957

Home
Romania

Diagnosis
Stargardt's disease

Eyes Affected
Both, but mainly the left one

Eye Color
Hazel

Age at Diagnosis
40

Treatment
None

Prognosis or Current State of Vision
I prefer not to go to eye doctors, because they depress me. The last time I went, my ophthalmalogist told me: How surprising that you can still see!

Family History
None that I know of.

Impact on My Life
I don't consider my disease as very severe. I treat it by ignoring it and I hope positive thinking helps. To me, at least, it does. My colour sense is diminishing and I have trouble recognizing faces, but then I concentrate better and this helps. The negative impact is that concentrating so much I am always very tired and stressed out. Working long hours is also a problem. The worst is that I find difficulties in reading, while literature was always my passion.

Positive Effects
My husband is very close and affectionate. He always encourages me. Adaptations: I stroll a lot with my dog and find relazation in nature. I adapted myself to the idea that I should only read those books that are really important to me. When I am extremely tired and my eyes hurt, I lie down for a few minutes with my eyes closed. It helps.

Working

My work is very much related to my computer. I don't like to complain about my disease so nobody in my office knows about it.

More About Me

I am a positive person and I believe in what lies inside people. I think everybody must have something good inside. I always try to understand others rather than think about myself.