Age at Diagnosis
Prognosis or Current State of
Impact on My Life
Having to depend on different people to take me and my kids everywhere we need to go has always been the hardest part to deal with. Getting to and from work when the hours are not normal business hours is a challenge. Today, I was offered a new job, but its about 25 miles away in a neighboring city. I really have no idea how I am going to get to and from work 5 days a week from 12:00-9:00 pm.
Another difficult challenge with having Stargardt's is that I have never met or heard of another person who even had this disease until tonight. I never knew there were support groups where you could talk to other people dealing with the same hardships. I have always felt like no one in my circle really understands what its like.
I graduated from high school and college with a BS in Accounting.