Name
Kimberly Hornbeck
Born
3/6/64
Home
Grew up in Cape May NJ but am now living in Tipton IN
Diagnosis
Juvenile macular degeneration Stargardt's cone/rod dystrophy
Eyes Affected
both
Eye Color
hazel
Age at Diagnosis
22
Visual Acuity
20/200 both eyes
Treatment
Gene therapy and an array of hope!!
Prognosis or Current State of
Vision
Loss of central vision affecting both eyes in 1993. Currently, however, I feel my eyes are gradually and oh so slowly getting worse.
Family History
None that I'm aware of.
Impact on My Life
I can honestly say without a doubt I've learned
patience
Positive Effects
Live life day by day, not to sweat the small stuff, to appreciate
people for who they really are, to be thankful for who I am and
what I'm given, to really listen to others without judgment, to
accept my disability as a gift and learn from the
experience.
Adaptations
A CCTV has been on my wish list for some time. I'm currently using
a variety of magnifiers. I have Zoomtext software installed on my
computer.
Working
Phlebotomist for many years until I lost my central vision
Quaint clothing boutique at present, looking to get back into the medical field.
More About Me
I am the single parent of a teenage son, who keeps me on my toes.
I enjoy reading, music, bicycling, movies, cooking, entertaining
with family and friends, and the beach.
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