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THE MACULAR
DEGENERATION COMMUNITY

Kimberly
photo

Name
Kimberly Hornbeck

Born
3/6/64

Home
Grew up in Cape May NJ but am now living in Tipton IN

Diagnosis
Juvenile macular degeneration Stargardt's cone/rod dystrophy

Eyes Affected
both

Eye Color
hazel

Age at Diagnosis
22

Visual Acuity
20/200 both eyes

Treatment
Gene therapy and an array of hope!!

Prognosis or Current State of Vision
Loss of central vision affecting both eyes in 1993. Currently, however, I feel my eyes are gradually and oh so slowly getting worse.

Family History
None that I'm aware of.

Impact on My Life
I can honestly say without a doubt I've learned patience

Positive Effects
Live life day by day, not to sweat the small stuff, to appreciate people for who they really are, to be thankful for who I am and what I'm given, to really listen to others without judgment, to accept my disability as a gift and learn from the experience.

Adaptations
A CCTV has been on my wish list for some time. I'm currently using a variety of magnifiers. I have Zoomtext software installed on my computer.

Working
Phlebotomist for many years until I lost my central vision Quaint clothing boutique at present, looking to get back into the medical field.

More About Me
I am the single parent of a teenage son, who keeps me on my toes. I enjoy reading, music, bicycling, movies, cooking, entertaining with family and friends, and the beach.