June 15, 1947
Hereditary condition called CACD (Central Areolar Choroidal Dystrophy)
Rare condition which affects 1:200,000. Local Opthalmologist has never seen
this condition before.
I was eventually diagnosed by a visiting Retinal Surgeon from Brisbane.
Both. Similar progression and vision loss in both eyes..
Age at Diagnosis
53. Looking back, I had symptoms of vision loss several years ago, such as
losing track of the mouse pointer when using a computer.
20/30 in very small patch in centre. Sharply defined donut shaped ring of
One edge of blind area is less than 1 degree from centre in both eyes.
No treatment but advised to take antioxidants.
Prognosis or Current State of
Assessed as legally blind in March 2002, due to constricted fields and loss
of 80% central vision . Remaining patch of central vision expected to
deteriorate. The pattern of vision loss has the bizarre effect of me being
able to read a phone book but having great difficulty with lager print, such
as newspaper headlines. This is because larger letters will not "fit in" the
patch of remaining central vision.
None that I am aware of.
Impact on My Life
I was self employed and needed to be able to drive. Gave up driving in 2001
and I am now not working at all.
None that I can think of! It could be a lot worse, at least it is not life
I can still do most things except drive. Watching TV is difficult as I can
see only about 25% if the screen at a time at normal viewing distance.
Always wear wrap around UV shields when outdoors as UV levels in Cairns are
in the extreme range almost every day of the year. Sunlight gives me
headaches and eye pain and can cause new blind spots to appear which may
take 30 mins to fade away.
Gave up work recently. Enjoying early retirement!
More About Me
Married with two children in their 20's. No sign of eye problems in children
so far. Enjoy hobby of Amateur Radio. Treasurer of local Amateur Radio Club.