Dec 8, 1991
Green and grey
Age at Diagnosis
At diagnosis 5/10, now, 2 years after, 1/20
None except parents' love.
Prognosis or Current State of
No prognosis. Vision has decreased quicker than the doctors
Great grand father was diagnosed with MD in 2000.
Impact on My Life
Hard for a child to cope with such a handicap.
When warned, people pay more attention to Gaetan. The biggest
positive effect was subscribing to the list. Gaetan now knows
hundred of people all around the world. He is the only one at
school to have so many friends.
Gaetan has to sit on the first row in class, which he doesn't
appreciate.... Had to give up cycling because he couldn't see cars
coming, but he replaced it with a child's scooter.
We will see in a few years.
More About Me
My mother, Karine, is writing for me [Gaetan does not speak
English], but I am sure she doesn't tell you all the truth about
me. I am a nice little boy with a horrible young brother called
Quentin. I have a pussy cat called "Virgule" and a gold fish called
"Legume". My father, Erik, plays music and helps me a lot with my
schoolwork. I am in primary school and I am a good pupil, but often
behave as a nasty little brat. My parents are the nicest people in
the world, and I love them a lot. I have new glasses to help me,
They are tinted and have bi-focal. I use a hand magnifier at
school, but we have planned to get an electronic magnifier with a
screen. I like Harry Potter, and my favourite book is "Le Petit
Prince" from Antoine de St Exupery. I had the chance to meet Linda
Olsen in Paris last autumn, and I am now longing to meet other
people from the list, as my mother promised me we would go to
Canada and USA in two years time.