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THE MACULAR
DEGENERATION COMMUNITY

Elaine


 

Name
Elaine Abdalla

Born
June 12, 1992

Home
Charleston, WV

Diagnosis
Stargardt Disease

Eyes Affected
Both

Eye Color
Blue/Grey

Age at Diagnosis
13

Acuity
20/200

Treatment
None

Prognosis
Right now I have 20/200. It could get worse, but I'm hoping it won't. I'm going to the the WVU Eye Institute this July to get some more tests done.

Family History
None, but I don't have any way of contacting my real father, and my mother doesn't know anything about him. So he might be a carrier.

Impact On Your Life
I have only one friend, and my family doesn't really talk about it. My friend doesn't understand it and always forgets that I have the disease. But I have a wonderful fiance that reads to me and does everything to help me. He's my strength.

Positive Effects
I get to leave class a lot to the library to use my CCTV, so that way I don't have to put up with all the immature jokes people have to say about me.

Adaptations
I wear sunglasses every once in a while, though I should wear them whenever I go outside. And I use a CCTV and other smaller magnifiers.

Employment
None as of yet, though this summer I plan to volunteer at the animal shelter.

More About Me
The only person who really tries to make things easier for me is my fiance, and I depend on him a lot. I love him to death, and I hope to stay with him forever. My parents don't really think about my disease very much, though they pretend to care every once in a while. I hope to become a writer/journalist or a chef. If neither of those work out, I REALLY want to do something with world history, like become an Archeology or World History professor.