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THE MACULAR
DEGENERATION COMMUNITY

Debbie


 

Name
Debbie Twiddy

Born
April 25, 1964

Home
Newcastle, UK

Diagnosis
Stargardt disease

Eyes Affected
Both

Eye Color
Brown

Age at Diagnosis
43

Acuity
No idea

Treatment
None. Told to go and look on the internet for info???

Prognosis or Current State of Vision
Left eye worst, a little in the right eye. I'm having tests next week to get better prognosis of how disease will progress?? Need glasses to read, but at my age I suppose that's normal. Left eye seems to be doing all the work.

Family History
No history of eye disease in family.

Impact on My Life
I don't like it!!! I'm very concerned that I'm going to completely lose my sight, even though opthalmologist says it is slow progression. I'm not convinced, so at the moment I'm hoping for a miracle, or probably more sensibly a medical breakthrough. This Stargen from a company based in the UK seems optomistic, but I've been told that it probably won't be able to be used for all cases, so I'll probably be the one it doesn't work for. Just my luck!!!

Positive Effects
None, I'm a mum of two, what's positive about the prospect of not being able to see your grandchildren???

Employment
I work part time at a local retail store, but I'm not looking too far forward, because I expect to have to leave when I can't read any more.

More About Me
I'm a married mother of two children, aged 15 and 10, and I used to love craft, crochet, watch tv--all things you do with your eyes, so I'm expecting to not be able to do any of the above pretty soon.