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THE MACULAR
DEGENERATION COMMUNITY

Dan


 

Name
Dan Sullivan

Born
4-21-55

Home
Wausau, WI

Diagnosis
Stargardt disease

Eyes Affected
Both

Eye Color
Blue

Age at Diagnosis
10

Acuity
20/400 to 20/600

Treatment
After seeing specalist from one coast to the other, I am learning to contemplate that there is no real treatment for this disorder.

Prognosis
Currently and forever out of sight

Family History
Older sister and younger brother have same diagnosis/font>

Impact On Your Life
Turned me into a real life Charlie Brown, defiant, yet a perservering character. Amongst the battles, struggles and obstacles, I have prevailed by being audacious, persistent, and unconventional. Because of unique nature of Stargardt's, my life is one of balancing between having my situation understood as a disabiity, yet not openly or readily viewed as one.

Positive Effects
Learned to avoid the negatives.

Adaptations
Enhanced computer system with Zoomtext, magnifiers for reading, and udpated lighting.

Employment
Recently retired after careers in five different fileds wich included healthcare management, retail management, public relatios, education administration, and mediation. Curretly working as a writer with two published books and numerous articles. Also dabble in furniture restoration and woodcarving.

More About Me
My half century of dealing with Stargardts has now been chronicled in a book titled "Glimpse". This book is a wiseacre anthology about dashing and crasing through adversity. It profiles the extraordinary measure, which some of us take, just for the sake of fitting in.