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THE MACULAR
DEGENERATION COMMUNITY

 

Dan
photo

Name
Dan Roberts (Director, MD Support)

Born
7-21-46

Home
Kansas City MO

Diagnosis
Macular Degeneration from Central Serous Retinopathy (CSR)

Eyes Affected
Both eyes.

Eye Color
Blue

Age at Diagnosis
48

Visual Acuity
peripheral vision only (left), 20/40 corrected (right).

Treatment
Taking AREDS formula (Macula Complete) and omega-3. Following all known precautions for protecting retinas. Keeping stress level as low as possible, since hyperadrenalism is thought to be a cause of CSR.

Prognosis or Current State of Vision
Progressive central vision loss.

Family History
Paternal great grandmother blind from unknown causes. Maternal great grandmother lost vision from cataracts, and may also have had undiagnosed retinal degeneration. Mother had cataracts and showed symptoms of retinitis pigmentosa, but died at age 59 without a diagnosis.

Impact on My Life
This disease motivated me to retire from public school music teaching and church music ministry to run my own performing arts academy. This has allowed me to devote time to public awareness of macular degeneration and related diseases.

Positive Effects
Building the Internet MD Community and making its resources available to the general public has been my self-imposed therapy. I have also learned to prepare for the worst, expect the best, and live in the present.

Adaptations
Increased lighting, magnification, extra pairs of glasses with different prescriptions for different needs, limited driving, use of text-to-speech software when eyes get tired.

Working
Retired in 1995 after many years in public school teaching, church music ministry, and director of a performing arts academy. Now, in addition to duties as director of MD Support and editor-in-chief at Prevent Blindness America, I continue to teach private piano and voice lessons in my home.

More About Me
Married since 1968 to Christina. Three grown children and seven grandchildren. Favorite pastimes: traveling, playing the piano, oil painting, and writing.