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Name
Anne
Born
May 17, 1955 in Dayton, Ohio
Home
Phoenix, AZ for now
Diagnosis
Myopic Macular Degeneration with Ocular Hypertension
Eyes Affected
both
Eye Color
brown
Age at Diagnosis
44, Feb2000
Visual Acuity
Left has always been bad, now it only has color and motion; right
is 20/200, legally blind from 20/30 corrected. Diagnosed originally
Dec.1999, but finally found retina specialist who diagnosed in
February, 2000.
Treatment
Betaoptic S for fluid pressure in right, left eye not being
treated.
Prognosis or Current State of
Vision
Prognosis is total loss, but appears stable for now, don't know if
mine is wet/dry, I've had detachment in left with buckle, and
multiple laser treatments for tears in right, more than 10
different surgeries, starting at age 6 for amblyopia, crossed eyes,
cataracts, retina tears, etc.
Family History
Some myopia, hyperopia, parents and siblings, and
astigmatism.
Impact on My Life
Devastating, still trying to adjust, lost most of my independence,
has placed my job at risk, total upheaval!
Positive Effects
I get a seat on the bus because of my cane, and meeting people
like those on MD Support. VR has also been great to me.
Adaptations
Too many to list, continuing to make them, getting more and more
aids, and equipment.
Working
Working presently, for the State, but getting lots of animosity
from coworkers and bosses because of ADA accommodations, claims of
"favortism", getting off easy, etc. real big problem
More About Me
Suddenly becoming disabled terrifies me. I've given up on ever
meeting my soulmate and finding companionship. Still, I've just
joined a congregation, and the people have been wonderful, and I
feel at home with them. They've been helpful and supportive. I
think I'm going to enjoy being a "degenerate."
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