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THE MACULAR
DEGENERATION COMMUNITY

Amber


 

Name
Amber D

Born
August 3 1988

Home
Indiana/font>

Diagnosis
Stargardt disease

Eyes Affected
Both

Eye Color
Brown

Age at Diagnosis
9

Acuity
20/200 and 20/400

Treatment
None

Prognosis
Central vision loss

Family History
None that I know of. My older brother has an eye disease called cone dystrophy.

Impact On Your Life
I am not able to get a license. Hard for me to get a job. Can't see without being up close to things. Don't like meeting new people. I also don't tell people about it. I guess I'm embarrassed by it.

Positive Effects
Hasn't gotten any worse.

More About Me
I have 2 kids. So far they don't act like anything is wrong. They are too young to find out. I am going to be getting married.