Internet E-mail Lists
for
Retinal Degeneration

Here are opportunities to communicate by e-mail with groups of people who share various retinal degenerative conditions. Subscription is free, and membership can be anywhere from twenty to a thousand.


Blind-Diet - designed to meet the specific needs of blind and visually impaired individuals who are striving toward a healthier lifestyle.
To subscribe, send the message SUBSCRIBE BLIND-DIET (Your First and Last Name) to listserv@maelstrom.stjohns.edu.

BADEYES - socialization, help and humor for people with retinal degeneration.
E-mail: badeyes-subscribe@onelist.com
List Owner: Fred Brown

BLINDFAM - for families who include a member who is blind.
To subscribe, send the message SUBSCRIBE BLINDFAM (Your First & Last Name) to listserv@maelstrom.stjohns.edu.

BLINDJOB - promotes discussion on any and every aspect of employment as it relates to blind people.
To subscribe, send the message SUBSCRIBE BLINDJOB (Your First and Last Name) to listserv@maelstrom.stjohns.edu/.
E-mail: blindjob-request@maelstrom.stjohns.edu or toews@cyberspc.mb.ca
Listowner: Bruce Toews

Blind-side - discussion about anything related to current events, celebrities, and other newsworthy topics among the blind and visually impaired.
To subscribe, send a blank message to blind-side-subscribe@smartgroups.com.

BLINDNWS - This one way mailing list is the Blind News Digest.
To subscribe, send the message SUBSCRIBE BLINDNWS (Your First & Last Name) to listserv@vm1.nodak.edu.

BRAILLE - for the discussion of Braille in Czech and English.
To subscribe, send the message SUBSCRIBE BRAILLE (Your First & Last Name) to listserv@earn.cvut.cz.

BRCTR - This list is for the Braille Research Center Forum.
To subscribe, send the message SUBSCRIBE BRCTR (Your First & Last Name) to listserv@ulkyvm.louisville.edu.

bsports - discussion of topics dealing specifically with sports for the blind.
To subscribe, send the message SUBSCRIBE BSPORTS (Your First and Last Name) to listserv@nfbcal.org.
E-mail: jmeddaug@nfbcal.org
Listowner: J.J. Meddaugh

BUDDY-L - for guide dog users.
To subscribe, send the message SUBSCRIBE BUDDY-L (Your First & Last Name) to buddy-admin@scs.tamu.edu.

Bvi-Parents Mailing List - Bvi-Parents is a list where parents of blind and visually impaired children can come to find information and support.
To subscribe, send any message to: bvi-parents-subscribe@onelist.com.
Moderator: Sarah Blake.

CHM_lifestyles - a chat list for people with choroideremia. Invitation only.
List owner: Bill Tucker.

CHOROIDEREMIA - all topics related to choroideremia.
E-mail: choroideremia-subscribe@onelist.com
List owner: Bill Tucker.

HANDS - primarily aimed at blind high school and college students.
To subscribe, send the message SUBSCRIBE HANDS (Your First and Last Name) to listserv@maelstrom.stjohns.edu.
E-mail: HANDS-Request@maelstrom.stjohns.edu

LOWVIS - for people who have, or are interested in low vision. Technical information only.
To subscribe, send the message SUBSCRIBE LOWVIS (Your First & Last Name) to listserv@maelstrom.stjohns.edu.

MDList - for personal and technical discussions with over 400 people affected by macular degeneration and related conditions.
To subscribe, send a blank message to mdlist@mdsupport.org with SUBSCRIBE in the subject window. For more information about MDList, select this link.
List owner: Dan Roberts.

MIDI-MAG - for blind musicians to discuss adaptive access to computer-based music making technologies.
To subscribe, send the message SUBSCRIBE MIDI-MAG (Your First & Last Name) to listserv@netcom.com.

NABS-L - for National Alliance of Blind Students symposium.
To subscribe, send the message SUBSCRIBE NABS-L (Your First & Last Name) to listserv@vmd.cso.uiuc.edu.

Naked Eye - discussion about surgical treatment methods against myopia, including current research, results, techniques, products, and personal experiences.
To subscribe, send the message SUBSCRIBE NAKED-EYE (Your First & Last Name) to majordomo@ifi.uio.no.

OANDM - discussion of topics related to orientation and mobility.
To subscribe, send the message SUBSCRIBE OANDM (Your First & Last Name) to listserv@msu.edu.

PRDVSERV - discussion of all retinal degenerations in German.
To subscribe, write to the list owner, and ask to be added.

R-BLASTOMA - for persons with Retinoblastoma, their family and friends.
To subscribe send the message SUBSCRIBE R-BLASTOMA to listserv@listserv.medinfo.org.
Listowner: Gilles Frydman.

RET-PIG - retinitis pigmentosa, medical and research oriented.
To subscribe, send the message SUBSCRIBE RET-PIG (Your First & Last Name) to listserv@nic.surfnet.nl.
E-mail: ret-pig-request@nic.surfnet.nl.

RP Fresh Sight - an Internet discussion board for teens with retinitis pigmentosa and similar diseases.
To subscribe, go to: http://groups.yahoo.com/group/RP_Fresh_Sight.

RP-Friends - an open forum for people with RP.
To subscribe send a blank message to: rp-friends-subscribe@onelist.com
List owner: Carlton Griffin.

RPLIST - support and information regarding all retinal degenerations.
To subscribe, send the message SUBSCRIBE RPLIST (Your First & Last Name) to listserv@maelstrom.stjohns.edu.
E-mail: rplist-request@maelstrom.stjohns.edu.

RPLISTE-FR - discussion of all retinal degenerations in French.
To subscribe, send the message SUBSCRIBE RPLISTE-FR (Your First & Last Name) to listserv@maelstrom.stjohns.edu.
E-mail: rpliste-fr-request@maelstrom.stjohns.edu.

USHERS - for persons with Usher syndrome, family and friends.
E-mail: Ushers-subscribe@onelist.com.
List owner: Randall Pope.

For a list of blindness and low vision related mailing lists, see: http://www.hicom.net/~oedipus/blist.html, or send the message GET BLIST INFO to listserv@maelstrom.stjohns.edu. (File size approx. 300 KB.)


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