|
|
Many family members and friends of people with ARMD have asked me what they can do to help. Here are fifteen tips:
1. Be direct about vision.
Ask questions so that you know.
Don't worry about using phrases like "Did you see Zelda
yesterday?"
2. Identify yourself, and say hello.
Don't assume that others can
see you.
3. Give clear directions.
Say in words everything you
want to convey.
4. Use black felt-tip or ink pens, and print
in clear lettering.
Always write notes so that they
can be read, and consider calling instead.
5. Give low-vision gifts.
Some suggestions: talking
calculators, watches, clocks, thermometers, weight scales, or
computer software. Large-button or automatic-dialing telephones,
large print cards, clocks, calendars, or address books. Books on
tape or tickets to a concert. Help purchase a CCTV. [See "Low
Vision Aids" on this web site for a list of dealers in these
products.]
6. Keep the environment predictable.
Keep frequently-used items like
house keys, salt shakers, and trash bags in designated places. Put
things away after you use them, and close cupboard and stairwell
doors. Return any item you move to the place you found
it.
7. Offer your arm, don't take theirs.
Don't take their arm, because
you may throw them off-balance. Offer help where it's necessary,
but don't just do it yourself.
8. Don't just do for your parent.
Don't assume that because of
low vision your parent isn't capable, and don't take away anyone's
reason for having to be up and about in the morning.
9. Share activities you both enjoy.
Some suggestions:
10. Encourage interests.
Encourage hobbies, volunteer
work, membership in senior clubs or support groups, and listening
to National Public Radio news or to Newsweek on cassette
tape. Just coping with low vision as a full-time preoccupation is a
short-term recipe for boredom, and a long-term recipe for personal
distress and crisis.
11. Realize the importance of friends.
Without any friends, seniors
are prone to loneliness, which may lead to clinical depression.
Adult children would do their parents a great service by helping
them make or keep friends.
12. Watch for depression.
Depression is very common among
people with MD. Be aware of changes in your friend or family
member's emotional state, sleeping patterns, weight, or behavior.
Signals for depression are excessive worry, bouts of crying,
listlessness or disinterest, low motivation, pessimism or
snippiness, social withdrawal, a refusal to communicate or an
excessively stiff upper lip, moping, or helplessness. If you see
signs of depression, make a doctor's appointment, pursue visual
rehabilitation, and encourage involvement in new
activities.
13. Participate in visual
rehabilitation.
There are many practical things
you can do to help someone follow a program of visual
rehabilitation. Here are just a few suggestions:
14. Help start a support group.
At a low vision support group,
your friend or family member would have the chance to talk to
people who have walked a mile in their shoes and can understand
their experiences. They can also be very helpful for spouses of
people with low vision. [See Chapter 6 of this book for guidelines
on starting a support group.]
15. Keep your sense of humor.
We are all prone to taking life
too seriously. Let your friend or family member see the daily humor
in this busy, unpredictable, ridiculous, profound, heartbreaking,
and heartwarming experience we call living.