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This is a non-selective compilation of information on all known charitable organizations serving the national macular degeneration community. It is provided for convenience only and is not necessarily an endorsement of the organizations or their activities. Visitors are encouraged to consider all of the criteria discussed below before patronizing or contributing to these or any other charitable group.

To add an organization to this list, contact Dan Roberts, MD Support Director


What Makes an Effective Service Organization?

The effectiveness of a service organization is best defined by its activities, accomplishments, and financial management. Opinions about the effectiveness of an organization may, therefore, be based upon subjective criteria such as:

  • Satisfaction of all statements made in the organization’s publicized description.
  • Appropriate use of public contributions and grants. (Financial information is available through this site from GuideStar.)
  • Web site meets minimum standards for low vision access.
  • Solicitation methods meet acceptable ethical standards. (See article, “Wolves in Sheep’s Clothing: How To Avoid Charity Rip-Offs”.

Organizations


American Macular Degeneration Foundation

www.macular.org

P.O. Box 515
Northampton MA 01061-0515

Description:
“To promote and conduct basic and applied research and provide education for eye diseases, in particular, macular degeneration.”

Notice
The information on this organization’s website is outdated, and no research contributions are reported.

Activities:

  • Sale of newsletter.
  • Web site.

Financial Information: View financial information.


Association For Macular Diseases

macula.org

210 E 64th
New York NY 10021

Description:
“The Association for Macular Disease is an entirely volunteer, nonprofit association dedicated to helping people with macular diseases lead independent lives. Motto: Nil Desperandum (Don’t Despair).” Works in collaboration with the Macula Foundation.

Activities:

  • Free quarterly newsletter.
  • Educational seminars.
  • Informational web site.

Financial Information: View Financial Information


Fight For Sight, Inc.

www.FightforSight.org

381 Park Ave S
Ste 809
New York, NY 10016

Description:
The mission of Fight for Sight is to support vision research to find the causes and cures for blindness and to help save the sight of children through support of pediatric eye centers.

Activities:

  • Research funding.
  • Helps maintain eye clinics for disadvantaged children.
  • Patient referral service.
  • Student and post-doctoral fellowships.
  • Grants-in-aid.

Financial Information: View Financial Information


Macular Degeneration Association

Website: www.maculardegenerationassociation.org

5959 Cattleridge Blvd., Suite 100
Sarasota,FL 34232

Description:

Provides education that will “improve the quality of life today, tomorrow, and in the future for patients and their caregivers”.

Activities:

  • Solicitation of public contributions by direct mail.
  • Educational events.
  • Newsletter

Financial Information:


Macular Degeneration Foundation

www.eyesight.org

P.O. Box 531313
Henderson, NV 89053

Description:
“Dedicated to serving the interests of those affected by Macular Degeneration and related low vision conditions”

Activities:

Financial Information: View Financial Information


Macular Degeneration Partnership

www.amd.org

Gavin Herbert Eye Institute, University of California
Irvine, California

Description:
Supports ongoing research, coordinates advocacy campaigns throughout the world, and provides comprehensive, easily understood and up-to-the-minute information about macular degeneration for everyone who needs it.

Activities:

  • Monthly online newsletter.
  • Free email subscription to AMD Update.
  • Telephone information line: 1-888-430-9898
  • Informational web site.

Financial Information: View Financial Information


Macular Degeneration Research

www.brightfocus.org/macular

A program of:
Bright Focus Foundation
22512 Gateway Center Drive
Clarksburg MD 20871
Toll-free phone number: 1.855.345.6637

Description:
Supports research and provides public education to help eradicate brain and eye diseases, including macular degeneration. Provides free educational materials to people affected by or interested in these diseases.

Activities:

  • Research funding
  • Resources for people affected by macular degeneration, including caregivers
  • Advocacy to end macular degeneration
  • Toll-free phone number: 1.855.345.6637>

Financial Information: View Financial Information


Macular Degeneration Support

www.mdsupport.org

3600 Blue Ridge Blvd
Grandview MO 64030-1561

Description:
Provides information and support for people affected by macular degeneration and related diseases of the retina. Recipient of the 2004 “Distinguished Service Award” of the American Optometric Association’s Low Vision Rehabilitation Section, and the National Eye Institute’s 2006 Healthy Vision Community Award.

Activities:

  • Help line: 1-800-866-6148 (USA) / +1-816-761-7080 (Intl)
  • Sponsorship of TeleSupport, a free monthly telephone support group.
  • Sponsorship of the International Low Vision Support Group, with more than 170 affiliates worldwide.
  • Sponsorship of MDList, an email discussion group.
  • Sponsorship of MDForum, an Internet message board.
  • Production and publication of free books and over 100 audio/visual presentations about low vision research, living with vision loss, and rehabilitation.
  • Designer and provider of LowViz Guide, a free indoor way finding application for state and national conventions for the visually impaired.
  • Advocate at the national level for governmental support of low vision research and patient support.
  • Maintenance of the Internet’s oldest and largest web site dedicated solely to the low vision community.

Financial Information:  View Financial Information


Macular Society

https://www.macularsociety.org/

P.O. Box 1870
Andover
Hampshire
SP10 9AD
United Kingdom

Description:
“A self-help society for those affected by any of the eye conditions encompassed by the overall name of Macular Disease, such as AMD, Macular Dystrophy, Myopic Degeneration etc.”

Activities (all UK based):

  • funding of research
  • hosting of conferences
  • nation-wide network of local support groups
  • distribution of quarterly magazine and audio tapes (to paid members)
  • telephone support Helpline
  • professional & confidential telephone-based counselling service
  • informational website with audio and video downloads

Financial Information: By request from the organization


Macula Vision Research Foundation

www.mvrf.org

100 Front Street, Suite 300
West Conshohocken, PA 19428

Description:
Increases awareness of macular degeneration.

Activities:

  • Research funding.

Financial Information: View Financial Information


The Foundation Fighting Blindness

www.blindness.org

11435 Cronhill Drive
Owings Mills, MD 21117-2220

Description:
“The Foundation Fighting Blindness was incorporated in 1971 to sponsor and/or assist in the research of the causes, treatments, and prevention of retinitis pigmentosa, macular degeneration, Usher syndrome, and other retinal degenerative diseases. It is composed of volunteer-based affiliates throughout the United States who are dedicated to supporting the Foundation’s efforts. The urgent mission of The Foundation Fighting Blindness is to fund the research that will discover the causes, treatments, preventive methods, and cures for the entire spectrum of blinding, retinal degenerative diseases.”

Activities:

  • Human services information.
  • Research funding.
  • Physician referrals.
  • Free newsletter.
  • Sponsorship of annual “Visions” conference.
  • Informational web site.

Financial Information: View Financial Information


The Macula Foundation, Inc.

maculafoundation.org

210 E 64th St.
New York NY 10021

Description:
“The Macula Foundation supports basic and clinical research in macular diseases of the eye, which represents a major cause of visual impairment in all age groups.” Works in collaboration with the Association For Macular Diseases.

Activities:

  • Research funding.
  • Public lectures.

Financial Information: View Financial Information


Research to Prevent Blindness

www.rpbusa.org

645 Madison Ave., Floor 21
New York, NY 10022-1010

Description:
“Research to Prevent Blindness (RPB) is the leading non-government supporter of eye research directed at the prevention, treatment or eradication of all diseases that threaten vision.”

Activities:

  • Major eye research funding to more than 50 leading scientific institutions in the U.S.
  • Support for hundreds of talented vision scientists engaged i n a diverse range of disease-oriented research.

Financial Information: View Financial Information


National Retina Institute Research Foundation, Inc.

www.nationalretina.com

901 Dulaney Valley Rd, Ste 200
Towson, MD 21204

Description:
“Research concerning retinal disorders.”

Activities:

  • Study of scar tissue formation on the retina after surgery.
  • Study of pathobiology of age-related macular degeneration.

Financial Information: Contact the organization.